Yearly Archives: 2016
Driving Experience X 2
What an awesome night for Ray. Ray got the pleasure of riding in and driving both a Ferrari 458 and a Tesla S in one evening. Thanks so much to Leslie and Naj Husain for so generously allowing Ray to have such a great experience! Thanks to Doug Crowe for setting it […]
Gene Therapy for XSCID
We are in the process of getting Ray ready to participate in this trial. Even though it will require that Ray receive bulsulfan (a drug often used in cancer treatments). We feel that the XSCID Gene Therapy protocol is the going to be the best way to improve not only […]
Make a Wish Recipient Becomes a Wish Grantor
WASHINGTON (WUSA9) Peggy Fox, WUSA – How great would it be to grant wishes for sick children? Of course, that’s what Make A Wish Foundation does. The people who decide to grant the wishes are not Genies, but volunteers called Wish-Grantors. But a new Wish-Grantor in Northern Virginia has an unusual […]
St. Jude Symposium and Gene Therapy
June 13th and 14th, 2016 I was lucky enough to be invited to attend a SCID Symposium at St. Jude’s Research Hospital in Memphis, TN. Heather Smith and Mickey Morgan were also there. Looking back it was quite fortunate that I was able to attend. My mindset for the trip […]
Birthday 2016
So for Ray’s birthday he wanted to go to the Gun Show and Hooters. Looks like he enjoyed Hooters!