SCID Initiative


What’s a Twibbon?

I created a Twibbon!  I know you’re wondering, “What’s a Twibbon?”  Well, a Twibbon is a little tag or sticker that you can put onto your profile picture on Facebook or Twitter.  So, what kind of “Twibbon” did I create?  A SCID Newborn Screening Twibbon, of course.  Now you can […]


Universal newborn SCID screening has potential to save lives, money

Universal newborn SCID screening has potential to save lives, money Existing blood tests may help unlock some of the mysteries surrounding infant immunodeficiency syndromes, according to a speaker at the American Academy of Allergy and Immunology Annual Meeting held in Washington this week.   Performing inexpensive quantitative polymerase chain reaction […]


Public Comment

On 2/26/09 The Advisory Committee on Heritable Disorders in Newborns and Children met at the Pooks Hill Marriott.  This is the committee who decides whether or not to recommend any new newborn screening tests to HRSA.  The committee has been meeting since June 2004 and so far has not recommended […]