Monthly Archives: May 2017


SCREEEEEEEEEEEEECCCCHHHHH!!!!

That’s the sound of brakes, coming from Bethesda, MD. Yep, that is what another delay sounds like. The first indications came over almost 2 weeks ago. I got a call from the doc at NIH telling me that they’d run another test on this latest batch of vectors from St. […]


At NIH

After a little schedule adjustment Ray and I are finally at NIH tonight for his bone marrow aspirate, scheduled for tomorrow. Hopefully it will occur early enough in the day for everyone to check out Ray and approved him to leave by tomorrow afternoon/evening. Today was one of those days […]


First step

Next week Ray has to be at NIH for a couple of days for a bone marrow aspirate. I believe this is to provide all the information on the current or baseline ability of his bone marrow including cell production lines and chimerism. Wednesday will be all the typical pre-op […]