The Time is Now This is the cover story for the IDF Advocate for Spring 2010. It includes quotes from Carol Ann, Heather, and me. There are also pictures of ^Liam Barrett^, Taylor Dahley, David Singh, and Ray. The IDF Advocate is available in PDF format from the Immune […]
I’m really late in posting this, but I never actually typed it up until today. The HRSA Advisory Committee on Heritable Disorders in Newborns and Children met again on January 21, 2010. I presented public once again and spoke after Stacey Barrett, who told the committee that her son […]
On January 21st, when the ACHDNC recommended to Secretary Sebelius that SCID newborn screening be added to the core panel of diseases which are recommended for all states, a clock began ticking. She has, by law, 180 days to either recommend SCID newborn screening or send it back to the […]
Today, 1/21/10 the Advisory Committee on Heritable Diseases in Newborns and Children voted to recommend that Universal Newborn Screening for SCID be recommended to Secretary Kathleen Sebelius. She has 180 days to approve or disapprove. If approved then the lobbying will begin to get every state to include this screening […]
Oh yea, it was in my Public Comment to the HRSA advisory committee. AAAAI: Rotavirus Vaccine May Cause Infections in SCID Kids By John Gever, Senior Editor, MedPage Today Published: March 18, 2009 Reviewed by Dori F. Zaleznik, MD; Associate Clinical Professor of Medicine, Harvard Medical School, Boston. WASHINGTON, […]
Universal newborn SCID screening has potential to save lives, money Existing blood tests may help unlock some of the mysteries surrounding infant immunodeficiency syndromes, according to a speaker at the American Academy of Allergy and Immunology Annual Meeting held in Washington this week. Performing inexpensive quantitative polymerase chain reaction […]
On 2/26/09 The Advisory Committee on Heritable Disorders in Newborns and Children met at the Pooks Hill Marriott. This is the committee who decides whether or not to recommend any new newborn screening tests to HRSA. The committee has been meeting since June 2004 and so far has not recommended […]
Americans with Disabilities ActADA Business BRIEF: Communicating with People Who Are Deaf or Hard of Hearing in Hospital Settings People who are deaf or hard of hearing use a variety of ways to communicate. Some rely on sign language interpreters or assistive listening devices; some rely primarily on written messages. […]
In December 2006 the Advisory Committee on Heritable Disorders in Newborns and Children, ACHDNC, met at the Hilton Washington Hotel in Washington, DC. I presented public comment during that session on why it was important for the committee to consider recommending SCID to the Secretary of Health. To date, the committee, […]
