Birthday 2016
So for Ray’s birthday he wanted to go to the Gun Show and Hooters. Looks like he enjoyed Hooters!
So for Ray’s birthday he wanted to go to the Gun Show and Hooters. Looks like he enjoyed Hooters!
On August 30, 2015 Ray was admitted to Fairfax Hospital with a fever that had been going on for 5 days. This resulted in a month long admission much of which was in the PICU. We appreciated the amazing support offered from friends, family, and physicians. We received calls from […]
IDF produced this video in order to help families understand why isolation of SCID infants is so important through their treatment. It also shows that isolation is not forever and that there is hope for these children to go on to lead happy and healthy lives. Newborn screening is making […]
It didn’t seem like it would ever happen. Ray’s Make A Wish was to go to Hawaii, but repeated hospitalizations seemed to make it impossible to coordinate the trip. At one point the trip was planned, the tickets issued, but Ray ended up back in the hospital. Make A Wish […]
This video is the Fox5 story on Timmy (and older brother Josh). This shows the day Timmy was allowed to leave NIH. This is the follow up story on their family.
From the IDF’s SCID Newborn Screening Blog On October 4, Virginia’s Genetics Advisory Committee met to discuss the proposed addition of SCID to the state’s newborn screening panel. IDF Board of Trustees member Barb Ballard presented on the current status of implementation throughout the country. Dr. Anne Comeau from Massachusetts’ […]
Did you know that a part of your sports physical includes riding bitch on your pediatrician’s motorcycle?