News & History
09/10/10
Things we do This is Ray’s IV pump and TPN. TPN is IV nutrition. He usually gets TPN once a week to supplement his enteral (g-tube) feeds.
08/24/10
We’ll now that I’m well over a week behind, I need to try and catch up. On Tuesday, 8/24 Ray went into the Fairfax PICU with a GI bleed. He was released on the 28th, but it’s taken me this long to find the time to catch up. So, my […]
08/05/10
You Capture – Summer This picture shows where Ray spent what he considers to be the best part of summer, at Victory Junction camp. He loves it here.
Take Action in Virginia
Originally written for the IDF SCID Newborn Screening Blog My son Ray was born with XSCID, but since there was no family history of the disease, he was not diagnosed until he was so sick with pneumonia that he was on a ventilator. He has permanent organ damage because of […]