Guest Book

Anne Klein from Sacramento wrote on May 10, 2017

Thinking of you, Ray! Hope your procedure goes well tomorrow!

Sarah from Mechanicsville wrote on May 10, 2017

hi, ray! thinking of you and your family! you guys are just amazing, the most resilient people i know! prayers your way

Rose Golda from West Seneca wrote on May 10, 2017

Praying for all of you! Barb- Happy Mothers Day to a fabulous, dedicated & loving Mom. You are a blessing to Ray. Thank you for keeping us all in the loop. This SCID family is an amazing group of people, and though this disease sucks, the love and support that has emerged is a blessing to us all...and that is largely due to YOU!! 💕

Iren Knott from Lutherville wrote on May 6, 2017

Ray,
Michael would do the exact same thing...knock him out and wake him up when it is done. Good luck with everything next week. Please let us k now if there is anything we can do for you and your parents. Love, The Knott's

Linda Iredale from Wakefirld wrote on May 5, 2017

Hi guys,
Ray, I have to say I don't blame you. I wouldn't want to be awake either. Hoping all goes smoothly and the results are all positive. I will keep you all in my prayers, sending big hugs and love to all of you.

Debbie Vetter from Manassas wrote on May 3, 2017

Hi Ray,

Just wanted to say "Hi" and let you know that Jim and I have been thinking of you! We have Deuce here with us. I know he misses you. How can I get pictures to you? Hang in there and I'll be back soon!

Debbie

Marcia Schroeder from Kansas City wrote on April 30, 2017

Praying and praying for Ray and all of you guys. Stay strong. Easier said than done, I realize.
Blessings...

Joanne Klein from Guelph wrote on April 30, 2017

Waiting can be so frustrating but June will be here in no time. I really hope that everything goes well. I'll be thinking of you. Hang in there.

Joy Rosario from South Africa wrote on April 30, 2017

We nearly have liftoff, hoping and praying all goes well xxx

Evelyn Chiasson from Mandeville, LA wrote on April 29, 2017

Hugs and best wishes to you all!

Bill and Sandy Long from Front Royal wrote on April 29, 2017

Lifting each one of you in prayers! Ray, you are remarkable! Your parents are pretty cool, too! Hugs to you all!!

Evelyn Chiasson from Mandeville, LA wrote on April 29, 2017

Praying that all goes well with the preparations and the gene therapy!

Jennifer Smith from North Fort Myers wrote on April 29, 2017

Gosh, Barb...you must be so exhausted. June is right around the corner. I am so excited to see this BLUE RIBBON FLOWER working in Ray and making all of your lives better!🌟🌟🌟🌟🌟🔖🔖🔖🔖🔖 (imagine this blue) lol! Prayers!!

Linda Iredale from Wakefield wrote on April 29, 2017

Hi Don, Barb and Ray,
WOW , just read the latest entry. My stomach actually did a flip when I read that this could all take place in a month. Holy moly, I can't even imagine your nerves Barb. Will pray extra hard that this can finally get underway and Ray can begin to live a more healthy life. Sending tons of hugs, much love and an abundance of prayers for all involved.

Doug Wigner from Henrico wrote on April 29, 2017

Glad to hear the good news! On our prayer list!

Leslie Tillman from Chantilly wrote on April 29, 2017

Glad it's looking like they can get started. Sending love and prayers for all three of you. ❤️

Angela Valente from Woodstock wrote on April 29, 2017

Praying for good things!! It's a journey most can't endure but you are all doing so well taking it all in stride and and simply having the faith it will all work out well. You're all forging a path for those that follow, and we're all praying for Ray and your family! Best of luck!!!

Heidi wrote on April 29, 2017

What a trip! Prayers continuing... we also do the nighttime monitor, (((hugs))) the need for sleep is real! 💕

Irene Knott from Lutherville Timonium wrote on February 22, 2017

Hi Barb, Don & Ray,
GREAT NEWS! You know we are all pulling for you and love you all very much. Your angels are working very hard for you when you get an amazing result plus they had time for a rainbow too.
Love,
Steve, Irene & Michael

Linda Iredale from Wakefield wrote on February 22, 2017

Dearest Barb,
Yes ma'am, someone was definitely in your corner today. No way, no how would I have ever thought that they were going to save that port. Thankfully, you will all get to sleep at home tonight. Sending hugs,love and prayers!!!!!!!👏🏻👏🏻👏🏻👍🏻👍🏻👍🏻💚💚💚💚

Linda Iredale from Wakefield wrote on February 22, 2017

Dear Barb,
Ok, so my stomach just hit the floor. Ray, I swear you are slowly trying to kill me. 😜😜😟😟!!! Needless to say there will be tons of prayers being sent your way. Along with lots of love and hugs, Linda PS, please keep us updated!!!

Heidi wrote on February 22, 2017

Well darned that old port anyway! Frustrating when those things blow... Keeping you in our prayers... ((((hugs)))) too! Heidi and the gang from Idaho

Doug Crowe from Fairfax Station wrote on February 22, 2017

Ray is a super hero, thoughts and prayers to you guys !

Linda from Wakefield RI wrote on January 3, 2017

Hi Barb, Don and Ray,
Thanks so much for the update. I hope you hear more specific dates and times soon. It's like living in limbo right now. Ray, I am hoping you are keeping healthy. Please know I am keeping all of you in my prayers.
Sending love, hugs and prayers ❤️❤️❤️

Jeff Root from Fairfax wrote on December 18, 2016

Ray,

I'm only now catching up on what you've been going through the past few weeks. I'm glad you're home and hope you're feeling well. Merry Christmas!!

Heather Smith from Lakeland wrote on December 11, 2016

So happy to hear your back home and have this part behind you 😉

Joanne Klein from Guelph wrote on December 10, 2016

Hello! Glad to see you are home. Hang in there.

Linda from Wakefield wrote on December 10, 2016

HOME....such a nice place to be😍!!!!! Get some rest everyone 😍😍😍😍!!! Much love and sending prayers

Linda from Wakefield RI wrote on December 9, 2016

Of course I knew the last post was too good to be true😜😜😜!!!!! Ray, Ray, Ray....you gotta quit throwing those curve balls. Barb, I swear we need to nominate you for an award. With all you have been through 😍😍, I swear they would have locked me up long ago!!! Sending love, prayers and hugs. I should be sending truck loads of wine😂😂😂😂

Linda from Wakefield RI wrote on December 9, 2016

Yes..!!!!! So very glad that things went smoothly and they have the cells they need. It sure was a long day😨!!!! So very happy that part is done. Ray, you are the man❤️💚❤️💚. Continuing to say many prayers and I am sending you guys huge hugs and much love.

Jennifer Smith from NFM wrote on December 8, 2016

"After apheresis"... sorry about all the complications and extended time. So thankful for the staff and Ray's endurance! All in all, very good news! Yay!! Hope you all get some rest tonight.🙂

Kathy Woltz wrote on December 7, 2016

In my prayers! Love you all.

linda.iredale wrote on December 7, 2016

Oh Ray...WHAT are we going to do with you😜😜😜!!! I told you not to throw us any curve balls...4 doctors 3 nurses and your poor mother. You're going to kill me Ray😜😜😜. Seriously, sure hope things are going ok and they get what they need. Sending love, hugs and prayers that all will go smoothly.

Jennifer Smith from North Fort Myers wrote on December 7, 2016

Delay: always a reason...look for the blessing!💕💕

broadbentlynn wrote on December 7, 2016

Dislike the Delay! Let's get this show on the road.

Jennifer Smith from North Fort Myers wrote on December 7, 2016

Hi, Ray!
Just thinking about you and hoping you have a great day!

☃️☃️☃️❄️❄️❄️

Frances wrote on December 6, 2016

Good luck on Wednesday. Praying for a good vein stick.

Aditi Chaudhary wrote on December 6, 2016

Greetings from India...how exciting that you will be having gene therapy - the "cure" and not just a "treatment". Thanks for keeping us posted and May the Lord shower his choices blessings on you and make this journey fruitful. Love, hugs, prayers and positivity Aditi

Sumathi Iyengar from Chapel Hill wrote on December 5, 2016

Good Luck, Ray! You got this! Best Wishes for a smooth apheresis and successful GT.

linda.iredale wrote on December 5, 2016

Hi Barb, Don and Ray,
Just read the latest update. Barb, that line placement doesn't sound to easy. Will they put Ray to sleep to do it? Sending hugs, love and above all lots of prayers that everything goes like clockwork. NO CURVE BALLS Ray !!!!!!!

marjova from Brasilia. Brasil wrote on December 5, 2016

Hi, Ray! This is Maria Valença from Brasil. I have two SCID kids that are also Dr. Buckley's patients. I am praying for you that everything goes well. God bless . Maria and family.

Doug Crowe from Fairfax Station wrote on December 5, 2016

All the best Ray ! As the greatest Ferrari drive in northern, VA you got this easy !!!

Get well soon,

Doug

Donna Wagner from Grande prairie, Canada wrote on December 5, 2016

Thinking of you Ray as you start this new leg of your journey. Barb and Don, thinking of you two with love and comfort. Love and hugs Ballard family 💚❤️💚

Mary, Tony and Matthew from Clifton wrote on December 5, 2016

Hi Ray, we'll be thinking about you throughout this and look forward to seeing you when you are home.

Joy Rosario from Western Cape wrote on December 5, 2016

Rooting for you Ray! Warmest wishes from South Africa xxx

Anne & Everett wrote on December 2, 2016

Ray - You have some fans on the left coast who are rooting for you, BIG TIME!!! Bring on the T's, B's & NK's!

Chris walters from Floyd wrote on December 2, 2016

Hey ray its chris and i'll be praying for you man love ya and god bless you

Jennifer Smith wrote on December 1, 2016

That is a beautiful Christmas display!! Thinking of all 3 of you. One day at a time!

linda.iredale from Wakefield wrote on December 1, 2016

Ok Ray, buckle up bud the ride is about to begin. Know that I will be with you all the way so PLEASE don't any curves at us. I don't do well on curvy rides. Will send prayers and hugs to you, Mom and Dad!!! You got this Ray❤️❤️❤️!!! The beginning to a new healthy life...🙏🏻🙏🏻🙏🏻🙏🏻👍🏻👍🏻👍🏻👍🏻👍🏻Love ya all, Linda

Sonia from Tucson wrote on November 30, 2016

Good morning Ray,
We are here always cheering for you and praying for you guys.
Sending you a great big hug,
Sonia

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