Post your message of encouragement to Barb
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Barb,
I cannot even fathom going through. I do know without a doubt your life was enriched with Don and Ray in it. In fact all of our lives are better because of your family. You all have done so much for the PI community in general, but for the SCID community in particular, you have been quite literally a God send.
Ray was sunshine Ray. He lit up a room with his smile and his infectious laugh. He touched more lives in his 25 year than most people touch in 80. He had your warrior spirit. He fought hard to be normal because you fought hard for him. The contributions you guys have made will go on for generations. I know you still have so much to do to get through the next little while, but, when you can sit down and take a deep breath, please know that there are many of us out here ready to support you in whatever way we can. You are so loved.
I cannot even fathom going through. I do know without a doubt your life was enriched with Don and Ray in it. In fact all of our lives are better because of your family. You all have done so much for the PI community in general, but for the SCID community in particular, you have been quite literally a God send.
Ray was sunshine Ray. He lit up a room with his smile and his infectious laugh. He touched more lives in his 25 year than most people touch in 80. He had your warrior spirit. He fought hard to be normal because you fought hard for him. The contributions you guys have made will go on for generations. I know you still have so much to do to get through the next little while, but, when you can sit down and take a deep breath, please know that there are many of us out here ready to support you in whatever way we can. You are so loved.