Guest Book


Notepad and pen in bright environment.

Post your message of encouragement to Barb

We appreciate you leaving a message when you visit the site. It lets Ray know that you are following his progress.

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Arlene E Von der Porten - Jacobs from Valrico
February 20, 2019
Barb,
I am so sorry that you have joined this very sad "club". Ray was a hero, but so are you. I have been there with you through your journey, though you may not remember me. My son passed away at 18 months from SCID - 26 years ago. I feel your anguish. Ray was the "survivor" and I was so glad to watch him grow up. I know that you have been going it alone for the past few years, since Don died. Your new reality is going to be so hard, but if you need someone to talk to... I'm here for you. I'm adding my email so you can feel free to message me personally. <3 <3 <3
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